8 thoughts on “Things That Plague Us: Lyme Disease”
Andrea Post author
The link appeared to be old. I have updated it so you can watch now. If you are still having problems, search for “Under Our Skin” on YouTube. There is also a sequel.
Or as in my case hundreds of thousands. Because I test negative for Lyme since Lyme testing is inaccurate but have been shown the spirochete in my blood with a darkfield. The ILADs says Lyme is a “clinical diagnosis” yet here in America we rely on testing that we know is heavily flawed. It has also been proven antibiotics do not work for chronic Lyme.
My daughter was diagnosed with Lyme in the panhandle area of Florida in 2008 and has been suffering ever since with various problems. We have finally found an LLMD in MS that is treating her but the antibiotic treatments don’t seem to be helping much. We know she has co-infections too. Bartonella for sure as well as others that are causing severe digestive issues as well as other more common symptoms. One doctor has already removed her Gall bladder for no reason since it was obviously not the problem and another was trying to remove her appendix too afterwards but we told them no! I started researching the Lyme connection several months ago because I have been convinced she has been having recurring bouts every year in the spring and fall since she was originally treated with IV antibiotics. I came across several articles dealing with MTHFR and I know for sure she has some form of this as do all three of my nieces and I suspect my mother that just passed away from Alzheimer’s did as well. I tell you all of this to ask a basic question about methylation and whether an LLMD should be aware of the problems associated with detoxification when it comes to someone with MTHFR. My daughter is only 24 and has been suffering for the past 7 years and we desperately need to find a cure. If it means we need to find another doctor… we will. She was just referred to Tulane Medical Center and has an appointment coming up in September. Just wondering if we should mention any of this information?
Hi Wanda – you may notice I moved your comment to this post, which is about how Lyme and MTHFR are related. Yes! You should definitely mention it as the mutations affect all aspects of detox, including organic toxins like Lyme and co. Good luck with your treatment!
I take issue with “new theories suggests transmission could take place through the placenta”. My family is living proof that this is more than a theory….it’s a fact. My twin boys were born with borreliosis (Lyme disease) from me because I didn’t know I had it until after they were born. I had an “old placenta” at 20-some weeks (meaning my placenta was more like that of a pregnant woman closer to 40 weeks) and no one could figure out why. Sadly now we know.
No problem, I just want people to be aware that is true. Thank you for your other information you posted………from what I have learned so far, everything else you posted is accurate. If anyone reading this is planning on getting pregnant, even if you don’t have any symptoms of Lyme (I didn’t at the time), you still have NOTHING to lose and everything to gain by finding an LLMD and getting a Western blot test. (regular doctors misinterpret results like mine did………….I had Lyme all along but thanks to stupid bogus CDC guidelines, I was told it was a “negative” even though I had positive Lyme specific bands just not enough to make their ridiculous quota) I wish I had done that, then I would’ve been on antibiotics throughout my pregnancy and my boys would not have gotten Lyme. Hope this spares someone from going through what we are. God bless <3
I agree with most of your article. I got Lyme in 1974 at age 18. Was “blown off ” by scores do doctors. Undiagnosed 30 years. Fought hard with drugs, detox, etc. for 10 yrs. got “better” but at 58 I have now relapsed and am sicker than ever. I have spent my life studying this disease.
So, I have one comment regarding your statement: “But spending a few hundred dollars (even thousands) to get to your root cause and get it solved and out of your way so you can get back to your life is, to me, a non-negotiable if that is what it takes. ”
Try tens of thousands of dollars ! No insurance coverage. Everyone is out of pocket. Lyme disease ruins you financially, ruins your family life and is uncurable. If you are diagnosed QUICKLY (The spirochete scan burrow into your spinal fluid within 8 hours of infection. The spirochete can encapsulate itself in hostile environments within 15 minutes to avoid antibiotic assault. ) you stand a chance of a cure. But so many people are misdiagnosed or “blown off” that very few get prompt treatment.
So, I take issue with the “thousands of dollars” remark. It takes tens of thousands. It takes your life. Check out the recent survey done on the California Lyme association website.
I am not a doctor and THIS BLOG DOES NOT PROVIDE MEDICAL ADVICE. This site is about my own healing journey. If you know or believe that you have a MTHFR mutation, hypothyroidism or other health problems, please get yourself tested and find a doctor or natural health practitioner who is willing to help you find the root cause and develop a personalized treatment plan for your particular body. This site is provided for informational purposes only, and the content is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider for answers to any questions you may have regarding a medical or health related condition. The content here is not intended to be relied upon for medical diagnosis or treatment. Always consult a health professional before making dramatic changes to your diet or lifestyle and before taking supplements. You are ultimately responsible for your own health. Reliance on this website and its content is solely at your own risk.
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Andrea Post author
The link appeared to be old. I have updated it so you can watch now. If you are still having problems, search for “Under Our Skin” on YouTube. There is also a sequel.
Tracey Nolan
Or as in my case hundreds of thousands. Because I test negative for Lyme since Lyme testing is inaccurate but have been shown the spirochete in my blood with a darkfield. The ILADs says Lyme is a “clinical diagnosis” yet here in America we rely on testing that we know is heavily flawed. It has also been proven antibiotics do not work for chronic Lyme.
wanda maltais
My daughter was diagnosed with Lyme in the panhandle area of Florida in 2008 and has been suffering ever since with various problems. We have finally found an LLMD in MS that is treating her but the antibiotic treatments don’t seem to be helping much. We know she has co-infections too. Bartonella for sure as well as others that are causing severe digestive issues as well as other more common symptoms. One doctor has already removed her Gall bladder for no reason since it was obviously not the problem and another was trying to remove her appendix too afterwards but we told them no! I started researching the Lyme connection several months ago because I have been convinced she has been having recurring bouts every year in the spring and fall since she was originally treated with IV antibiotics. I came across several articles dealing with MTHFR and I know for sure she has some form of this as do all three of my nieces and I suspect my mother that just passed away from Alzheimer’s did as well. I tell you all of this to ask a basic question about methylation and whether an LLMD should be aware of the problems associated with detoxification when it comes to someone with MTHFR. My daughter is only 24 and has been suffering for the past 7 years and we desperately need to find a cure. If it means we need to find another doctor… we will. She was just referred to Tulane Medical Center and has an appointment coming up in September. Just wondering if we should mention any of this information?
Andrea Post author
Hi Wanda – you may notice I moved your comment to this post, which is about how Lyme and MTHFR are related. Yes! You should definitely mention it as the mutations affect all aspects of detox, including organic toxins like Lyme and co. Good luck with your treatment!
Angie
I take issue with “new theories suggests transmission could take place through the placenta”. My family is living proof that this is more than a theory….it’s a fact. My twin boys were born with borreliosis (Lyme disease) from me because I didn’t know I had it until after they were born. I had an “old placenta” at 20-some weeks (meaning my placenta was more like that of a pregnant woman closer to 40 weeks) and no one could figure out why. Sadly now we know.
Andrea Post author
I’m so sorry to hear that, Angie. Thank you for sharing your story here.
Angie
No problem, I just want people to be aware that is true. Thank you for your other information you posted………from what I have learned so far, everything else you posted is accurate. If anyone reading this is planning on getting pregnant, even if you don’t have any symptoms of Lyme (I didn’t at the time), you still have NOTHING to lose and everything to gain by finding an LLMD and getting a Western blot test. (regular doctors misinterpret results like mine did………….I had Lyme all along but thanks to stupid bogus CDC guidelines, I was told it was a “negative” even though I had positive Lyme specific bands just not enough to make their ridiculous quota) I wish I had done that, then I would’ve been on antibiotics throughout my pregnancy and my boys would not have gotten Lyme. Hope this spares someone from going through what we are. God bless <3
Theresa Lee
I agree with most of your article. I got Lyme in 1974 at age 18. Was “blown off ” by scores do doctors. Undiagnosed 30 years. Fought hard with drugs, detox, etc. for 10 yrs. got “better” but at 58 I have now relapsed and am sicker than ever. I have spent my life studying this disease.
So, I have one comment regarding your statement: “But spending a few hundred dollars (even thousands) to get to your root cause and get it solved and out of your way so you can get back to your life is, to me, a non-negotiable if that is what it takes. ”
Try tens of thousands of dollars ! No insurance coverage. Everyone is out of pocket. Lyme disease ruins you financially, ruins your family life and is uncurable. If you are diagnosed QUICKLY (The spirochete scan burrow into your spinal fluid within 8 hours of infection. The spirochete can encapsulate itself in hostile environments within 15 minutes to avoid antibiotic assault. ) you stand a chance of a cure. But so many people are misdiagnosed or “blown off” that very few get prompt treatment.
So, I take issue with the “thousands of dollars” remark. It takes tens of thousands. It takes your life. Check out the recent survey done on the California Lyme association website.